Faduma A Farah
Saudi Arabia
Research Article
Surrogate End-Of-Life Decisions: Projection or Simulation
Author(s): Safa Hammami, Faduma A Farah and Muhammad M HammamiSafa Hammami, Faduma A Farah and Muhammad M Hammami
Background: Substituted judgment at the end-of-life is often needed to extend autonomy of decisionally incompetent patients who don’t have advance directive. Its moral appeal centers on surrogates’ ability to simulate patients’ choices as opposed to projecting their personal choices. The accuracy of the standard substituted judgement model has been questioned, and an integrative patient’s life-story narrative version has been suggested. The accuracy of the latter cannot be evaluated using the common methodology of life-saving intervention and binary-decision scenarios. We explored the accuracy of the life-story narrative version of substituted judgment using forced-ranking and Q-methodology.
Methods: A volunteer sample of seven family pairs (3 husband-wife, 1 parent-child, 3 sib-sib) participated in a pilot study. All.. View More»
